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Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
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Zeitschriftentitel: | BMJ Health & Care Informatics |
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Personen und Körperschaften: | , , , |
In: | BMJ Health & Care Informatics, 25, 2018, 4, S. 239-242 |
Medientyp: | E-Article |
Sprache: | Englisch |
veröffentlicht: |
BMJ
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Schlagwörter: |
author_facet |
Satinsky, Emily Driessens, Corine Crepaz-Keay, David Kousoulis, Antonis A. Satinsky, Emily Driessens, Corine Crepaz-Keay, David Kousoulis, Antonis A. |
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author |
Satinsky, Emily Driessens, Corine Crepaz-Keay, David Kousoulis, Antonis A. |
spellingShingle |
Satinsky, Emily Driessens, Corine Crepaz-Keay, David Kousoulis, Antonis A. BMJ Health & Care Informatics Mental health service users’ perceptions of data sharing and data protection: a short qualitative report Health Information Management Health Informatics Computer Science Applications |
author_sort |
satinsky, emily |
spelling |
Satinsky, Emily Driessens, Corine Crepaz-Keay, David Kousoulis, Antonis A. 2632-1009 BMJ Health Information Management Health Informatics Computer Science Applications http://dx.doi.org/10.14236/jhi.v25i4.1033 <jats:sec><jats:title>Background</jats:title><jats:p>To improve health services, social, economic and health data should be shared and linked to create a full narrative of lived experience. Mental health data sharing is often considered a particularly sensitive area.</jats:p></jats:sec><jats:sec><jats:title>Objective</jats:title><jats:p>To assess mental health service users’ perceptions regarding the current practice of administrative data-driven research.</jats:p></jats:sec><jats:sec sec-type="method"><jats:title>Method</jats:title><jats:p>We conducted a focus group using case study scenarios. Themes and subthemes were analysed using qualitative methods.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Participants were generally happy for data owners to share their health, social and economic data if the purpose was transparent and if the information would inform and improve health policy and practice. Participants were less keen on sharing data through digital applications.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>This case study informs a data linkage study protocol. Research teams and database owners should strive to educate service users on data protection and create dissent opportunities.</jats:p></jats:sec> Mental health service users’ perceptions of data sharing and data protection: a short qualitative report BMJ Health & Care Informatics |
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10.14236/jhi.v25i4.1033 |
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title |
Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_unstemmed |
Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_full |
Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_fullStr |
Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_full_unstemmed |
Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_short |
Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_sort |
mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
topic |
Health Information Management Health Informatics Computer Science Applications |
url |
http://dx.doi.org/10.14236/jhi.v25i4.1033 |
publishDate |
2018 |
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239-242 |
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<jats:sec><jats:title>Background</jats:title><jats:p>To improve health services, social, economic and health data should be shared and linked to create a full narrative of lived experience. Mental health data sharing is often considered a particularly sensitive area.</jats:p></jats:sec><jats:sec><jats:title>Objective</jats:title><jats:p>To assess mental health service users’ perceptions regarding the current practice of administrative data-driven research.</jats:p></jats:sec><jats:sec sec-type="method"><jats:title>Method</jats:title><jats:p>We conducted a focus group using case study scenarios. Themes and subthemes were analysed using qualitative methods.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Participants were generally happy for data owners to share their health, social and economic data if the purpose was transparent and if the information would inform and improve health policy and practice. Participants were less keen on sharing data through digital applications.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>This case study informs a data linkage study protocol. Research teams and database owners should strive to educate service users on data protection and create dissent opportunities.</jats:p></jats:sec> |
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author | Satinsky, Emily, Driessens, Corine, Crepaz-Keay, David, Kousoulis, Antonis A. |
author_facet | Satinsky, Emily, Driessens, Corine, Crepaz-Keay, David, Kousoulis, Antonis A., Satinsky, Emily, Driessens, Corine, Crepaz-Keay, David, Kousoulis, Antonis A. |
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description | <jats:sec><jats:title>Background</jats:title><jats:p>To improve health services, social, economic and health data should be shared and linked to create a full narrative of lived experience. Mental health data sharing is often considered a particularly sensitive area.</jats:p></jats:sec><jats:sec><jats:title>Objective</jats:title><jats:p>To assess mental health service users’ perceptions regarding the current practice of administrative data-driven research.</jats:p></jats:sec><jats:sec sec-type="method"><jats:title>Method</jats:title><jats:p>We conducted a focus group using case study scenarios. Themes and subthemes were analysed using qualitative methods.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Participants were generally happy for data owners to share their health, social and economic data if the purpose was transparent and if the information would inform and improve health policy and practice. Participants were less keen on sharing data through digital applications.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>This case study informs a data linkage study protocol. Research teams and database owners should strive to educate service users on data protection and create dissent opportunities.</jats:p></jats:sec> |
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spelling | Satinsky, Emily Driessens, Corine Crepaz-Keay, David Kousoulis, Antonis A. 2632-1009 BMJ Health Information Management Health Informatics Computer Science Applications http://dx.doi.org/10.14236/jhi.v25i4.1033 <jats:sec><jats:title>Background</jats:title><jats:p>To improve health services, social, economic and health data should be shared and linked to create a full narrative of lived experience. Mental health data sharing is often considered a particularly sensitive area.</jats:p></jats:sec><jats:sec><jats:title>Objective</jats:title><jats:p>To assess mental health service users’ perceptions regarding the current practice of administrative data-driven research.</jats:p></jats:sec><jats:sec sec-type="method"><jats:title>Method</jats:title><jats:p>We conducted a focus group using case study scenarios. Themes and subthemes were analysed using qualitative methods.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Participants were generally happy for data owners to share their health, social and economic data if the purpose was transparent and if the information would inform and improve health policy and practice. Participants were less keen on sharing data through digital applications.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>This case study informs a data linkage study protocol. Research teams and database owners should strive to educate service users on data protection and create dissent opportunities.</jats:p></jats:sec> Mental health service users’ perceptions of data sharing and data protection: a short qualitative report BMJ Health & Care Informatics |
spellingShingle | Satinsky, Emily, Driessens, Corine, Crepaz-Keay, David, Kousoulis, Antonis A., BMJ Health & Care Informatics, Mental health service users’ perceptions of data sharing and data protection: a short qualitative report, Health Information Management, Health Informatics, Computer Science Applications |
title | Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_full | Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_fullStr | Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_full_unstemmed | Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_short | Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_sort | mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
title_unstemmed | Mental health service users’ perceptions of data sharing and data protection: a short qualitative report |
topic | Health Information Management, Health Informatics, Computer Science Applications |
url | http://dx.doi.org/10.14236/jhi.v25i4.1033 |