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Mental health service users’ perceptions of data sharing and data protection: a short qualitative report

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Bibliographische Detailangaben
Zeitschriftentitel: BMJ Health & Care Informatics
Personen und Körperschaften: Satinsky, Emily, Driessens, Corine, Crepaz-Keay, David, Kousoulis, Antonis A.
In: BMJ Health & Care Informatics, 25, 2018, 4, S. 239-242
Medientyp: E-Article
Sprache: Englisch
veröffentlicht:
BMJ
Schlagwörter:
author_facet Satinsky, Emily
Driessens, Corine
Crepaz-Keay, David
Kousoulis, Antonis A.
Satinsky, Emily
Driessens, Corine
Crepaz-Keay, David
Kousoulis, Antonis A.
author Satinsky, Emily
Driessens, Corine
Crepaz-Keay, David
Kousoulis, Antonis A.
spellingShingle Satinsky, Emily
Driessens, Corine
Crepaz-Keay, David
Kousoulis, Antonis A.
BMJ Health & Care Informatics
Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
Health Information Management
Health Informatics
Computer Science Applications
author_sort satinsky, emily
spelling Satinsky, Emily Driessens, Corine Crepaz-Keay, David Kousoulis, Antonis A. 2632-1009 BMJ Health Information Management Health Informatics Computer Science Applications http://dx.doi.org/10.14236/jhi.v25i4.1033 <jats:sec><jats:title>Background</jats:title><jats:p>To improve health services, social, economic and health data should be shared and linked to create a full narrative of lived experience. Mental health data sharing is often considered a particularly sensitive area.</jats:p></jats:sec><jats:sec><jats:title>Objective</jats:title><jats:p>To assess mental health service users’ perceptions regarding the current practice of administrative data-driven research.</jats:p></jats:sec><jats:sec sec-type="method"><jats:title>Method</jats:title><jats:p>We conducted a focus group using case study scenarios. Themes and subthemes were analysed using qualitative methods.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Participants were generally happy for data owners to share their health, social and economic data if the purpose was transparent and if the information would inform and improve health policy and practice. Participants were less keen on sharing data through digital applications.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>This case study informs a data linkage study protocol. Research teams and database owners should strive to educate service users on data protection and create dissent opportunities.</jats:p></jats:sec> Mental health service users’ perceptions of data sharing and data protection: a short qualitative report BMJ Health & Care Informatics
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title Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_unstemmed Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_full Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_fullStr Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_full_unstemmed Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_short Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_sort mental health service users’ perceptions of data sharing and data protection: a short qualitative report
topic Health Information Management
Health Informatics
Computer Science Applications
url http://dx.doi.org/10.14236/jhi.v25i4.1033
publishDate 2018
physical 239-242
description <jats:sec><jats:title>Background</jats:title><jats:p>To improve health services, social, economic and health data should be shared and linked to create a full narrative of lived experience. Mental health data sharing is often considered a particularly sensitive area.</jats:p></jats:sec><jats:sec><jats:title>Objective</jats:title><jats:p>To assess mental health service users’ perceptions regarding the current practice of administrative data-driven research.</jats:p></jats:sec><jats:sec sec-type="method"><jats:title>Method</jats:title><jats:p>We conducted a focus group using case study scenarios. Themes and subthemes were analysed using qualitative methods.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Participants were generally happy for data owners to share their health, social and economic data if the purpose was transparent and if the information would inform and improve health policy and practice. Participants were less keen on sharing data through digital applications.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>This case study informs a data linkage study protocol. Research teams and database owners should strive to educate service users on data protection and create dissent opportunities.</jats:p></jats:sec>
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author Satinsky, Emily, Driessens, Corine, Crepaz-Keay, David, Kousoulis, Antonis A.
author_facet Satinsky, Emily, Driessens, Corine, Crepaz-Keay, David, Kousoulis, Antonis A., Satinsky, Emily, Driessens, Corine, Crepaz-Keay, David, Kousoulis, Antonis A.
author_sort satinsky, emily
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description <jats:sec><jats:title>Background</jats:title><jats:p>To improve health services, social, economic and health data should be shared and linked to create a full narrative of lived experience. Mental health data sharing is often considered a particularly sensitive area.</jats:p></jats:sec><jats:sec><jats:title>Objective</jats:title><jats:p>To assess mental health service users’ perceptions regarding the current practice of administrative data-driven research.</jats:p></jats:sec><jats:sec sec-type="method"><jats:title>Method</jats:title><jats:p>We conducted a focus group using case study scenarios. Themes and subthemes were analysed using qualitative methods.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Participants were generally happy for data owners to share their health, social and economic data if the purpose was transparent and if the information would inform and improve health policy and practice. Participants were less keen on sharing data through digital applications.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>This case study informs a data linkage study protocol. Research teams and database owners should strive to educate service users on data protection and create dissent opportunities.</jats:p></jats:sec>
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spelling Satinsky, Emily Driessens, Corine Crepaz-Keay, David Kousoulis, Antonis A. 2632-1009 BMJ Health Information Management Health Informatics Computer Science Applications http://dx.doi.org/10.14236/jhi.v25i4.1033 <jats:sec><jats:title>Background</jats:title><jats:p>To improve health services, social, economic and health data should be shared and linked to create a full narrative of lived experience. Mental health data sharing is often considered a particularly sensitive area.</jats:p></jats:sec><jats:sec><jats:title>Objective</jats:title><jats:p>To assess mental health service users’ perceptions regarding the current practice of administrative data-driven research.</jats:p></jats:sec><jats:sec sec-type="method"><jats:title>Method</jats:title><jats:p>We conducted a focus group using case study scenarios. Themes and subthemes were analysed using qualitative methods.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Participants were generally happy for data owners to share their health, social and economic data if the purpose was transparent and if the information would inform and improve health policy and practice. Participants were less keen on sharing data through digital applications.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>This case study informs a data linkage study protocol. Research teams and database owners should strive to educate service users on data protection and create dissent opportunities.</jats:p></jats:sec> Mental health service users’ perceptions of data sharing and data protection: a short qualitative report BMJ Health & Care Informatics
spellingShingle Satinsky, Emily, Driessens, Corine, Crepaz-Keay, David, Kousoulis, Antonis A., BMJ Health & Care Informatics, Mental health service users’ perceptions of data sharing and data protection: a short qualitative report, Health Information Management, Health Informatics, Computer Science Applications
title Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_full Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_fullStr Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_full_unstemmed Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_short Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_sort mental health service users’ perceptions of data sharing and data protection: a short qualitative report
title_unstemmed Mental health service users’ perceptions of data sharing and data protection: a short qualitative report
topic Health Information Management, Health Informatics, Computer Science Applications
url http://dx.doi.org/10.14236/jhi.v25i4.1033