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Newborn screening data management: proposing a framework for Iran

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Zeitschriftentitel: BMJ Health & Care Informatics
Personen und Körperschaften: Ayatollahi, Haleh, Karimi, Sara, Ahmadi, Maryam
In: BMJ Health & Care Informatics, 25, 2018, 4, S. 221-229
Medientyp: E-Article
Sprache: Englisch
veröffentlicht:
BMJ
Schlagwörter:
author_facet Ayatollahi, Haleh
Karimi, Sara
Ahmadi, Maryam
Ayatollahi, Haleh
Karimi, Sara
Ahmadi, Maryam
author Ayatollahi, Haleh
Karimi, Sara
Ahmadi, Maryam
spellingShingle Ayatollahi, Haleh
Karimi, Sara
Ahmadi, Maryam
BMJ Health & Care Informatics
Newborn screening data management: proposing a framework for Iran
Health Information Management
Health Informatics
Computer Science Applications
author_sort ayatollahi, haleh
spelling Ayatollahi, Haleh Karimi, Sara Ahmadi, Maryam 2632-1009 BMJ Health Information Management Health Informatics Computer Science Applications http://dx.doi.org/10.14236/jhi.v25i4.985 <jats:sec><jats:title>Introduction</jats:title><jats:p>Different countries use a variety of methods to manage the newborn screening data. In this study, we aimed to compare the experiences of the selected countries to propose a framework for managing the newborn screening data in Iran.</jats:p></jats:sec><jats:sec sec-type="methods"><jats:title>Methods</jats:title><jats:p>In this comparative study, data were collected using electronic databases and the official website of the Department of Health in America, England and Australia. Data related to the process of newborn screening in Iran were collected using an open-ended questionnaire and reviewing the published documents.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>In this study, a framework for newborn screening data management was proposed which consisted of six main areas, namely; objectives, involved organisations, data elements, data collection processes, data classification systems and the methods of controlling data quality.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>The framework suggested in this study can help to re-organise the process of newborn screening with more focus on data management. These data can be used in conducting research and setting strategies for improving the quality of child health in the country.</jats:p></jats:sec> Newborn screening data management: proposing a framework for Iran BMJ Health & Care Informatics
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title Newborn screening data management: proposing a framework for Iran
title_unstemmed Newborn screening data management: proposing a framework for Iran
title_full Newborn screening data management: proposing a framework for Iran
title_fullStr Newborn screening data management: proposing a framework for Iran
title_full_unstemmed Newborn screening data management: proposing a framework for Iran
title_short Newborn screening data management: proposing a framework for Iran
title_sort newborn screening data management: proposing a framework for iran
topic Health Information Management
Health Informatics
Computer Science Applications
url http://dx.doi.org/10.14236/jhi.v25i4.985
publishDate 2018
physical 221-229
description <jats:sec><jats:title>Introduction</jats:title><jats:p>Different countries use a variety of methods to manage the newborn screening data. In this study, we aimed to compare the experiences of the selected countries to propose a framework for managing the newborn screening data in Iran.</jats:p></jats:sec><jats:sec sec-type="methods"><jats:title>Methods</jats:title><jats:p>In this comparative study, data were collected using electronic databases and the official website of the Department of Health in America, England and Australia. Data related to the process of newborn screening in Iran were collected using an open-ended questionnaire and reviewing the published documents.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>In this study, a framework for newborn screening data management was proposed which consisted of six main areas, namely; objectives, involved organisations, data elements, data collection processes, data classification systems and the methods of controlling data quality.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>The framework suggested in this study can help to re-organise the process of newborn screening with more focus on data management. These data can be used in conducting research and setting strategies for improving the quality of child health in the country.</jats:p></jats:sec>
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author Ayatollahi, Haleh, Karimi, Sara, Ahmadi, Maryam
author_facet Ayatollahi, Haleh, Karimi, Sara, Ahmadi, Maryam, Ayatollahi, Haleh, Karimi, Sara, Ahmadi, Maryam
author_sort ayatollahi, haleh
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container_title BMJ Health & Care Informatics
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description <jats:sec><jats:title>Introduction</jats:title><jats:p>Different countries use a variety of methods to manage the newborn screening data. In this study, we aimed to compare the experiences of the selected countries to propose a framework for managing the newborn screening data in Iran.</jats:p></jats:sec><jats:sec sec-type="methods"><jats:title>Methods</jats:title><jats:p>In this comparative study, data were collected using electronic databases and the official website of the Department of Health in America, England and Australia. Data related to the process of newborn screening in Iran were collected using an open-ended questionnaire and reviewing the published documents.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>In this study, a framework for newborn screening data management was proposed which consisted of six main areas, namely; objectives, involved organisations, data elements, data collection processes, data classification systems and the methods of controlling data quality.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>The framework suggested in this study can help to re-organise the process of newborn screening with more focus on data management. These data can be used in conducting research and setting strategies for improving the quality of child health in the country.</jats:p></jats:sec>
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spelling Ayatollahi, Haleh Karimi, Sara Ahmadi, Maryam 2632-1009 BMJ Health Information Management Health Informatics Computer Science Applications http://dx.doi.org/10.14236/jhi.v25i4.985 <jats:sec><jats:title>Introduction</jats:title><jats:p>Different countries use a variety of methods to manage the newborn screening data. In this study, we aimed to compare the experiences of the selected countries to propose a framework for managing the newborn screening data in Iran.</jats:p></jats:sec><jats:sec sec-type="methods"><jats:title>Methods</jats:title><jats:p>In this comparative study, data were collected using electronic databases and the official website of the Department of Health in America, England and Australia. Data related to the process of newborn screening in Iran were collected using an open-ended questionnaire and reviewing the published documents.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>In this study, a framework for newborn screening data management was proposed which consisted of six main areas, namely; objectives, involved organisations, data elements, data collection processes, data classification systems and the methods of controlling data quality.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>The framework suggested in this study can help to re-organise the process of newborn screening with more focus on data management. These data can be used in conducting research and setting strategies for improving the quality of child health in the country.</jats:p></jats:sec> Newborn screening data management: proposing a framework for Iran BMJ Health & Care Informatics
spellingShingle Ayatollahi, Haleh, Karimi, Sara, Ahmadi, Maryam, BMJ Health & Care Informatics, Newborn screening data management: proposing a framework for Iran, Health Information Management, Health Informatics, Computer Science Applications
title Newborn screening data management: proposing a framework for Iran
title_full Newborn screening data management: proposing a framework for Iran
title_fullStr Newborn screening data management: proposing a framework for Iran
title_full_unstemmed Newborn screening data management: proposing a framework for Iran
title_short Newborn screening data management: proposing a framework for Iran
title_sort newborn screening data management: proposing a framework for iran
title_unstemmed Newborn screening data management: proposing a framework for Iran
topic Health Information Management, Health Informatics, Computer Science Applications
url http://dx.doi.org/10.14236/jhi.v25i4.985