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Newborn screening data management: proposing a framework for Iran
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Zeitschriftentitel: | BMJ Health & Care Informatics |
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Personen und Körperschaften: | , , |
In: | BMJ Health & Care Informatics, 25, 2018, 4, S. 221-229 |
Medientyp: | E-Article |
Sprache: | Englisch |
veröffentlicht: |
BMJ
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Schlagwörter: |
author_facet |
Ayatollahi, Haleh Karimi, Sara Ahmadi, Maryam Ayatollahi, Haleh Karimi, Sara Ahmadi, Maryam |
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author |
Ayatollahi, Haleh Karimi, Sara Ahmadi, Maryam |
spellingShingle |
Ayatollahi, Haleh Karimi, Sara Ahmadi, Maryam BMJ Health & Care Informatics Newborn screening data management: proposing a framework for Iran Health Information Management Health Informatics Computer Science Applications |
author_sort |
ayatollahi, haleh |
spelling |
Ayatollahi, Haleh Karimi, Sara Ahmadi, Maryam 2632-1009 BMJ Health Information Management Health Informatics Computer Science Applications http://dx.doi.org/10.14236/jhi.v25i4.985 <jats:sec><jats:title>Introduction</jats:title><jats:p>Different countries use a variety of methods to manage the newborn screening data. In this study, we aimed to compare the experiences of the selected countries to propose a framework for managing the newborn screening data in Iran.</jats:p></jats:sec><jats:sec sec-type="methods"><jats:title>Methods</jats:title><jats:p>In this comparative study, data were collected using electronic databases and the official website of the Department of Health in America, England and Australia. Data related to the process of newborn screening in Iran were collected using an open-ended questionnaire and reviewing the published documents.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>In this study, a framework for newborn screening data management was proposed which consisted of six main areas, namely; objectives, involved organisations, data elements, data collection processes, data classification systems and the methods of controlling data quality.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>The framework suggested in this study can help to re-organise the process of newborn screening with more focus on data management. These data can be used in conducting research and setting strategies for improving the quality of child health in the country.</jats:p></jats:sec> Newborn screening data management: proposing a framework for Iran BMJ Health & Care Informatics |
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Newborn screening data management: proposing a framework for Iran |
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Newborn screening data management: proposing a framework for Iran |
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Newborn screening data management: proposing a framework for Iran |
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Newborn screening data management: proposing a framework for Iran |
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Newborn screening data management: proposing a framework for Iran |
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Newborn screening data management: proposing a framework for Iran |
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newborn screening data management: proposing a framework for iran |
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Health Information Management Health Informatics Computer Science Applications |
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http://dx.doi.org/10.14236/jhi.v25i4.985 |
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2018 |
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221-229 |
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<jats:sec><jats:title>Introduction</jats:title><jats:p>Different countries use a variety of methods to manage the newborn screening data. In this study, we aimed to compare the experiences of the selected countries to propose a framework for managing the newborn screening data in Iran.</jats:p></jats:sec><jats:sec sec-type="methods"><jats:title>Methods</jats:title><jats:p>In this comparative study, data were collected using electronic databases and the official website of the Department of Health in America, England and Australia. Data related to the process of newborn screening in Iran were collected using an open-ended questionnaire and reviewing the published documents.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>In this study, a framework for newborn screening data management was proposed which consisted of six main areas, namely; objectives, involved organisations, data elements, data collection processes, data classification systems and the methods of controlling data quality.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>The framework suggested in this study can help to re-organise the process of newborn screening with more focus on data management. These data can be used in conducting research and setting strategies for improving the quality of child health in the country.</jats:p></jats:sec> |
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author | Ayatollahi, Haleh, Karimi, Sara, Ahmadi, Maryam |
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description | <jats:sec><jats:title>Introduction</jats:title><jats:p>Different countries use a variety of methods to manage the newborn screening data. In this study, we aimed to compare the experiences of the selected countries to propose a framework for managing the newborn screening data in Iran.</jats:p></jats:sec><jats:sec sec-type="methods"><jats:title>Methods</jats:title><jats:p>In this comparative study, data were collected using electronic databases and the official website of the Department of Health in America, England and Australia. Data related to the process of newborn screening in Iran were collected using an open-ended questionnaire and reviewing the published documents.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>In this study, a framework for newborn screening data management was proposed which consisted of six main areas, namely; objectives, involved organisations, data elements, data collection processes, data classification systems and the methods of controlling data quality.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>The framework suggested in this study can help to re-organise the process of newborn screening with more focus on data management. These data can be used in conducting research and setting strategies for improving the quality of child health in the country.</jats:p></jats:sec> |
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spelling | Ayatollahi, Haleh Karimi, Sara Ahmadi, Maryam 2632-1009 BMJ Health Information Management Health Informatics Computer Science Applications http://dx.doi.org/10.14236/jhi.v25i4.985 <jats:sec><jats:title>Introduction</jats:title><jats:p>Different countries use a variety of methods to manage the newborn screening data. In this study, we aimed to compare the experiences of the selected countries to propose a framework for managing the newborn screening data in Iran.</jats:p></jats:sec><jats:sec sec-type="methods"><jats:title>Methods</jats:title><jats:p>In this comparative study, data were collected using electronic databases and the official website of the Department of Health in America, England and Australia. Data related to the process of newborn screening in Iran were collected using an open-ended questionnaire and reviewing the published documents.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>In this study, a framework for newborn screening data management was proposed which consisted of six main areas, namely; objectives, involved organisations, data elements, data collection processes, data classification systems and the methods of controlling data quality.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>The framework suggested in this study can help to re-organise the process of newborn screening with more focus on data management. These data can be used in conducting research and setting strategies for improving the quality of child health in the country.</jats:p></jats:sec> Newborn screening data management: proposing a framework for Iran BMJ Health & Care Informatics |
spellingShingle | Ayatollahi, Haleh, Karimi, Sara, Ahmadi, Maryam, BMJ Health & Care Informatics, Newborn screening data management: proposing a framework for Iran, Health Information Management, Health Informatics, Computer Science Applications |
title | Newborn screening data management: proposing a framework for Iran |
title_full | Newborn screening data management: proposing a framework for Iran |
title_fullStr | Newborn screening data management: proposing a framework for Iran |
title_full_unstemmed | Newborn screening data management: proposing a framework for Iran |
title_short | Newborn screening data management: proposing a framework for Iran |
title_sort | newborn screening data management: proposing a framework for iran |
title_unstemmed | Newborn screening data management: proposing a framework for Iran |
topic | Health Information Management, Health Informatics, Computer Science Applications |
url | http://dx.doi.org/10.14236/jhi.v25i4.985 |